Multiple Sclerosis Diary

Multiple Sclerosis Diary

Hazy photo looks like MS feels sometimes.

Photo by Xi Xi on

November 3, 2019

My husband drove me to a restaurant in Gibsonton called Joia for the First Anniversary of the MS Support Group I joined one year ago here in Riverview, Florida. It started by Kelley Levy, who goes to Physical Therapy at the same place I go. DPT (Doctor of Physical Therapy) Katie King helped her sponsor the group.

This group is the second support group I’ve gone to that I found useful, The other one was in Minneapolis in 1987. That group shared openly about their challenges with MS. One woman was recovering from cancer with a positive attitude. I still walked, drove myself to meetings then. Now, I watch others who are where I was then.

What a difference twenty odd years makes.

We sat at a table for four and were joined by two other women. One woman, black and fifty-five sat next to me. Gina had been in the Air Force four years and advocated for the Veteran’s Hospital. Phyllis, the white woman sat across from me and next to Auburn. His conversation turned lively. He reminded me of the way I remember him in past years.

Phyllis had a service dog with her. That interested me. I often thought a service dog would be a welcome addition. But since I no longer walk, I’m not sure how that would work out.

The four of us found many things in common. Phyllis lived in Peoria, Arizona. Her parents still do. She loved it as I did and would return in a heartbeat. Me too! Auburn and Gina had their service in common. They talked about how the VA is changing for the better.

Show me the way to Amarillo!

Photo by Sabel Blanco on

Oh yes, we ate salad and pizza. I drank two margaritas. M-m-m-m-m!

Tomorrow evening, we go to our friend’s house for dessert at 7:00 PM. Raymond and Patricia Henry go to our church. They invited us to the first CARE Group her in Florida. I went to their son James’ high school graduation party in May.

Wednesday, November 6, 2019

Happy Birthday to Me!

Photo by on

Wednesday, November 6, 2019


Photo by Pixabay on

Happy Birthday To Me!!!

November 6th, 1940.

Seventy-nine years of age seems like such a long time. In the vast scheme of things, it’s an instant!

It’s been a delightful day so far!

Lots of Facebook greetings, phone calls from friends, Auburn fixing pulled pork for lunch. He’s such a good cook!

Often, sleepless nights haunt my reverie. Last night happened that way. As I thought about things, especially my birthday in the morning, it entered my mind that we don’t know how much longer our time on this beautiful planet will be.

“It’s my birthday, and I’ll cry if I want to.”

Then, tears filled my eyes for I’ve always hated good-byes. I don’t want to leave my husband, cats, and all the good things that fill my life.

Of course, I’ll go to a better life in Heaven. I won’t have MS. My eyes will see clearly without glasses. I’ll meet my parents again, and eventually everyone else.

No more tears. That will be one of the really good parts.

Meanwhile, I’ll just keep on truckin’.

2 responses to “Multiple Sclerosis Diary”

  1. Thanks for sharing.your insignts and thoughts. You are missed but I am sure that your courage and love of life will will be a inspiration for many. Love to you and that special guy of yours.


    • Hi Bev, This response is a long time coming. I miss you too Bev, more than you’ll ever know. How are you feeling? My MS continues to slowly deteriorate, but now that I’m exercising, I’m improving once again. Then I keep getting these lovely UTI infections. This is the second one since Christmas. Love you, Gail


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